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When the family caregiver is running out of strength

Respite, help at home and permission to change the plan.

Quick answer

Signs include exhaustion that sleep does not fix, getting sick more often, irritability, withdrawing from friends, dreading each day, and health problems of your own going untreated.

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What are the signs of caregiver burnout?

Signs include exhaustion that sleep does not fix, getting sick more often, irritability, withdrawing from friends, dreading each day, and health problems of your own going untreated.

Burnout is common, not a failure. Most caregivers wait too long to ask for help.

Where can Capital Region caregivers get respite?

Respite options include adult day health care, short respite stays in assisted living or nursing homes, home care hours, and caregiver programs run through the county Offices for the Aging.

Agencies with Capital Region office addresses on the state roster include 5 certified home health agencies, 60 licensed home care services agencies and 2 hospice licenses; many serve several counties, so ask each one whether it covers your parent's town.

Can a family caregiver be paid in New York?

Yes, through the Consumer Directed Personal Assistance Program, a Medicaid recipient can hire most relatives other than a spouse as their aide, paid through the statewide fiscal intermediary, Public Partnerships LLC.

See home care programs.

When is it time to consider a move?

It is time when the caregiver's own health is at risk, when care needs have outgrown what one person can provide, or when nights are no longer manageable.

Moving a parent to a residence often improves the relationship, because the caregiver can be a son or daughter again.

Who can help us plan?

The county Office for the Aging, NY Connects at 1-800-342-9871 and a senior care advisor can help plan respite and longer-term care at no cost.

Albany County's Department for Aging is at (518) 447-7198; Rensselaer County's is at (518) 270-2730.

How do Capital Region caregivers find support groups?

Ask the county Office for the Aging, the Alzheimer's Association's helpline at 1-800-272-3900, your parent's hospital or physician practice, or your house of worship; many groups meet in person in Albany, Schenectady, Troy and Saratoga, and others meet online.

A support group will not replace respite, but caregivers who attend one regularly often say it was where they first learned which local programs actually had openings.

What legal steps protect a family caregiver?

A durable power of attorney and a health care proxy, signed while the parent can still make decisions, let the caregiver handle bills, insurance and medical choices without going to court for a guardianship.

An elder law attorney can also review whether a written caregiver agreement makes sense if a relative is paid privately for care, which matters later if Medicaid reviews past transfers.

Side by side

Respite isRespite is not
PurposeRest for the caregiverGiving up
FormsAdult day, home care hours, short staysOnly a nursing home
PaymentOften Medicaid or EISEP cost-shareAlways private pay
TimingPlanned in advanceOnly a crisis measure

Where this page states a rule or a dollar figure, it relies on New York statute or regulation (Social Services Law, Public Health Law, 18 NYCRR and 10 NYCRR), Department of Health GIS messages and directories, CMS, the VA or CareScout, as named in the text. How we source facts: editorial standards.

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